• The UK Forum

    A multi-disciplinary group of health care professionals interested in all aspects of sickle cell disease, thalassaemia and related conditions.

    Read More
    The UK Forum
  • NHS Screening Programme

    Screening is the process of identifying people who appear healthy but may be at increased risk of a disease or condition.

    Read More
    NHS Screening Programme
  • Membership

    Membership includes specialist and interested nurses and counsellors, biomedical scientists, psychologists, paediatricians, haematologists and paediatric haematologists

    Become a Member

Academic Meetings

Latest information on all the Forums projects, meetings and activities.
Read More

Academic Meeting Video

UKTS & UK Forum on Haemoglobin Disorders (42nd Academic Meeting) Video. Download the video and watch off-line. N.B. video is quiet large and will take time to download.


The Forum holds meetings through the year - check the calendar
Read More

ASH Pocket Guides

A series of brief, evidence-based pocket guides. Covering thrombocytopenia in pregnancy, heparin-induced thrombocytopenia, red blood cell transfusion and more.
Read More


Access the documents, presentations, clinical guidelines, guides & papers
Read Mores

Transcranial Doppler Scanning Standards

Transcranial Doppler Scanning for Children with Sickle Cell Disease Standards and Guidance Second Edition September 2016
Read More

Services for People with Haemoglobin Disorders

Peer Review Programme 2014-16 Overview Report
Read More

2016 UKTS Standards

Visit the new UKTS standards site to download the new 2016 UKTS Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK. Previous standards also available
Read More
West Mid's Review

West Mid's Review

Peer Review Prog
A programme of peer review visits to services across England for adults with haemoglobin disorders. The review programme was organised by the UK Forum on Haemoglobin Disorders, working with the West Midlands Quality Review Service.
NHR Database

NHR Database

National Registry
The National Haemoglobinopathy Registry is a database of patients with red cell disorders (mainly Sickle Cell Disease and Thalassaemia Major) living in the UK. This new database collects data,which is required by the Department of Health from Haemoglobinopathy centres.
National Health Service

National Health Service

Blood & Transplant
A free blood group genotyping project from the blood service for all sickle and thalassaemia patients in England. It will determine Rh variants and the rest of the genotype and can be performed in those recently transfused. RCI laboratories also investigate adverse transfusion reactions
NHS screening (SCT)

NHS screening (SCT)

Population screening
Screening is the process of identifying people who appear healthy but may be at increased risk of a disease or condition. The NHS programme is a genetic screening programme. This means that it also identifies people who are genetic carriers for sickle cell, thalassaemia and other haemoglobin disorders.

Save the Date for May 15th for the 44th Academic Meeting of the UK Forum on Haemoglobin Disorders