A programme of peer review visits to services across England for adults with haemoglobin disorders. The review programme was organised by the UK Forum on Haemoglobin Disorders, working with the West Midlands Quality Review Service.
The National Haemoglobinopathy Registry is a database of patients with red cell disorders (mainly Sickle Cell Disease and Thalassaemia Major) living in the UK. This new database collects data,which is required by the Department of Health from Haemoglobinopathy centres.
A free blood group genotyping project from the blood service for all sickle and thalassaemia patients in England. It will determine Rh variants and the rest of the genotype and can be performed in those recently transfused. RCI laboratories also investigate adverse transfusion reactions
Screening is the process of identifying people who appear healthy but may be at increased risk of a disease or condition. The NHS programme is a genetic screening programme. This means that it also identifies people who are genetic carriers for sickle cell, thalassaemia and other haemoglobin disorders.