• Sickle cell and thalassaemia screening

    The NHS Sickle Cell and Thalassaemia (SCT) screening programme is a genetic screening programme. This means that it also identifies people who are genetic carriers for sickle cell, thalassaemia and other haemoglobin disorders.

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    Sickle cell and thalassaemia screening
  • Standards and Publications

    Access the latest clinical standards and guidelines

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    Standards and Publications

Sickle Cell Publications

Access all the Sickle Cell Societies research reports inc the ASH guides for healtcare professionals.
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SCORE

Sickle Cell Cohort Research transforming the lives of communities living with SCD in Nigeria and beyond.
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UKTS Care Standards

Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK
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16th TIF Int. Conference

Date: 17 – 19 November 2017 Venue: Thessaloniki, Greece
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ASH Pocket Guides

A series of brief, evidence-based pocket guides to help physicians provide quality care to patients.
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Information Resources

Resources for haemoglbinopathy health professionals to use and share.
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Forum Publications

Download the latest clinical standards, guidelines current and previous meeting presentations.
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Transcranial Scanning

The following standards have been written to replace the original transcranial doppler standards.
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West Midlands Quality Review Service is a collaborative venture by NHS organisations in the West Midlands to improve the quality of health services by undertaking reviews of the quality of clinical services
The National Haemoglobinopathy Registry is a database of patients with red cell disorders living in the UK. This new database collects data,which is required by the Department of Health from Haemoglobinopathy centres. The central aim of the registry is to improve patient care.
The National Institute for Health and Care Excellence (NICE) provides national guidance and advice to improve health and social care. Our guidance, advice, quality standards and information services for health, public health and social care. Also contains resources to help maximise use of evidence and guidance.
This Clinical Reference Group (CRG) covers Sickle Cell Disease (SCD), Thalassaemia and other very rare anaemias requiring lifelong transfusion and chelation. Haemoglobinopathies are complex disorders which although often grouped together and managed by the same specialist team, have distinct clinical manifestations and treatments.