Clinical Guidelines & Other:

Clinical Care of Children and Adults with Thalassaemia in the UK

Transcranial Doppler Scanning for Children with SCD Standards and Guidance 2nd Edition 2016

Consensus Oral Chelation_v7

Haemoglobinopathy workforce survey 27.8.2015

Services for People with Haemoglobin Disorders – Peer Review Programme 2014-16 Overview Report

Previous Meeting Presentations:

42nd Meeting

UKTS and the UK Forum on Haemoglobin Disorders (video)

National Haemglobinopathy Registry – Manchester Meeting     zipped file if needed

National Haemglobinopathy Registry – Annual Meeting 2016    zipped file if needed

41st Meeting

HRQL and Health  Behaviours in Children with SCD – C. Constantinou

HbSC disease – is it different and how should we manage it? – D.Rees

Measuring liver iron content in thalassaemia & SCD – M. Garbowski

NHR adverse Events – A. Cope

38th Meeting

 Bisphosphonates for bone thinning – risks and benefits

Sickle cell & thalassaemia screening programme update

Hematopoietic Stem Cell Transplant in Adults with SCD

Hydroxyurea revisited: the asymptomatic patient

Newborn Outcomes Project UK Haemoglobinopathy Forum 2014

NHR Update

Sickle cell Transplantation for Adults

Alternative donor transplantation in haemoglobinoapthies

27th Meeting

 2008 Haemoglobinopathy Feedback

 Clinical Haemoglobinopathies – A commissioning perspective – S. Mather

Haemoglobinopathy Nursing in the Acute Setting

Immunisation in Sickle Cell Disorder 2008

NMUH Conference November 2008

SCSP New models of care

The challenge of chronic illness

25th Meeting

Cannabinoids and pain relief – A. Holdcroft

23rd Meeting

Chelation therapy for transfusional iron overload – K. Ryan

Intravital capillaroscopy in sickle – M. Layton

SCD Abstract – C. Hillery

Survival and complications in thalassemia – C. Borgna-Pignatti

Survival of Thalassemia in 21stC – C. Borgna-Pignatti

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44th Academic Meeting of the UK Forum on Haemoglobin Disorders - Register & More Info

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